Tryptasemia & Co-Morbidities
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
In recent years, there have been quite a few outbreaks of Listeria (recently, 11 have died from Listeria in supplemental shakes). In my twenties, I experienced listeriosis, caused by Listeria monocytogenes. I was literally concerned that I might die.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Which of the following is likely to identify multiple copies of TPSAB1 (at this point of medical progress in February 2025)? I've spoken to HATS researchers, and this is a summary of the current status.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
I've done some government advocacy, but this is not one of the projects I worked on--but I'm so grateful someone did!
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
October is the official month to boost awareness of Mast Cell Disorders such as Hereditary αlpha Tryptasemia Syndrome.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
This article is paired up with another, I have a cough but it's not COVID. I've written this follow-up, because now the cough finally was COVID.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
On October 28, 2024, I had 2 vaccines/shots: COVID in my left arm and influenza in my right arm.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
A HATS co-morbidity; see also: Thriving w/ Lipedema🌸
I was introduced to Lymphedema and Lipedema at a HATS-related conference. How amazing, that there are others shaped just like me...normal size hands & feet, oversized hips, abdomen and thighs. Let's help raise awareness!
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Recently someone brought the National Health Service's test directory to my attention. As of July 2024, if not before, the test for Hereditary Alpha Tryptasemia is also known as R436.1 in the United Kingdom. For those of us in other countries, this is still valuable information, because If someone refers to the test by that name, we'll at least know to what they're referring.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
As mentioned in a previous article, vaccines can be tough on people with Hereditary Alpha Tryptasemia Syndrome. In 2022, the Moderna booster for COVID-19 was no exception. Bottom line: 2 sleepless nights, and the day between them was not too bad.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
Will I have an attack today? Talk about the $10,000 question! This is an article about my attempt to predict my upcoming health.
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- Written by Karen Smith-Will
- Parent Category: Research
- Category: Tryptasemia & Co-Morbidities
2022, November
We've updated the Faces of Tryptasemia HATS page with Nicole's new video.
2021, December
Per the Mast Cell Disease Society's December 31 email, the nonprofit has, among many other contributions,
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