In memoriam

1000070367I met Cheryl Kingsford in 2020, days before public meetings were eliminated due to COVID-19. We were both advocates on Capitol Hill...she spoke on behalf of Ectodermal Dysplasia; I was speaking on behalf of Hereditary alpha tryptasemia, or HATS and Lipedema

Screenshot 20240112 0627443Victoria "Vicky" Weeks was my friend at Fair Oaks Elementary School, in Highland Springs, Virginia. She was one of my first best friends in school. She was sweet & fun & hospitable...and she was the first friend I lost.

Last night I got a call, that Faye had died the night before.  Getting a call from an unknown or unexpected number in a Florida area code is always a little scary. But I had no idea that Faye had been close to the end.

Her obituary & burial (Find-a-Grave)