In memoriam
- Details
- Written by Karen Smith-Will
- Parent Category: Research
- Category: In memoriam
I met Cheryl Kingsford in 2020, days before public meetings were eliminated due to COVID-19. We were both advocates on Capitol Hill...she spoke on behalf of Ectodermal Dysplasia; I was speaking on behalf of Hereditary alpha tryptasemia, or HATS and Lipedema.
- Details
- Written by Karen Smith-Will
- Parent Category: Research
- Category: In memoriam
Victoria "Vicky" Weeks was my friend at Fair Oaks Elementary School, in Highland Springs, Virginia. She was one of my first best friends in school. She was sweet & fun & hospitable...and she was the first friend I lost.
- Details
- Written by Karen Smith-Will
- Parent Category: Research
- Category: In memoriam
Last night I got a call, that Faye had died the night before. Getting a call from an unknown or unexpected number in a Florida area code is always a little scary. But I had no idea that Faye had been close to the end.