In memoriam

Screenshot 20250316 142038Patricia "Pattie" Ashton Cornute came into my life in 2019. I first heard about Lipedema at The Mastocytosis Society conference in San Francisco. It took about a year for me to get diagnosed. Lipedema Fitness became my 1st Lipedema community. (photo: Kasi left; Pattie, right).

1000070367I met Cheryl Kingsford in 2020, days before public meetings were eliminated due to COVID-19. We were both advocates on Capitol Hill...she spoke on behalf of Ectodermal Dysplasia; I was speaking on behalf of Hereditary alpha tryptasemia, or HATS and Lipedema

Last night I got a call, that Faye had died the night before.  Getting a call from an unknown or unexpected number in a Florida area code is always a little scary. But I had no idea that Faye had been close to the end.

Her obituary & burial (Find-a-Grave)

Screenshot 20240112 0627443Victoria "Vicky" Weeks was my friend at Fair Oaks Elementary School, in Highland Springs, Virginia. She was one of my first best friends in school. She was sweet & fun & hospitable...and she was the first friend I lost.